What can parents have done differently?They were definitely concerned and well meaning but what else could they do to champion their children's medical rights?
Unfortunately the effects of managed care have done nothing to improve the relationship between the doctor and patient or parents of the patient. Nevertheless, doctors have a responsibility to patients of all ages and parents also have a responsibility to be alert, informed, and persistent.
Parents know their children better than anyone. Parents must demand a second opinion. Many healthcare plans do not allow for that contingency but parents must demand it anyway. Don't take no or no response for an answer. Don't let all the framed certificates in the doctor's office deter you from your gut instincts.
Parents should keep thorough records of their children's healthcare and take notes, bring a friend or relative when your child goes to the doctor, and/or tape record what goes on during the examination. Parents need to do their own research online from reputable websites or confer with a librarian to point you in the right direction for further research. Parents should give the doctor a list of questions and not leave the exam room until they are answered. Do not be intimidated by medical or technical jargon. Ask for an easy to understand explanation. Doctors went to medical school; you did not; don't be embarrassed.
Put your unanswered questions and complaints in writing and file complaints with the clinic or healthcare plan.
If your child suffers from ongoing vomiting, dehydration, fever, breathing problems, sleepiness, lethargy, stomach pain, distended belly, bloody stool, limping, weight loss (or failure to gain weight at a normal rate), excessive weight gain, vision problems; these symptoms could be signs of serious health issues. (The above statement should not be considered medical advice, but simply things parents should be on the lookout for and should discuss with their child's medical professionals.)
These are just three examples of pediatric medical malpractice; there are hundreds, if not thousands, of similarly sad experiences that could have been avoided if doctors had taken the time to listen to parents, and parents were more prepared in dealing with these obstacles.
